Category Archives: MDA

Labor Day means MDA to me

Tomorrow is a big day.

Tomorrow is the MDA Telethon.

Well, okay, so technically this year they aren’t calling it a telethon, but its still MDA’s biggest fundraiser of the entire year.

WHY is the telethon so important? Let me show you a picture my brother sent me last night.

That arrow is pointing at my nephew. On field for his first football game of his Freshman year of high school. ON FIELD. In his motorized wheelchair. He doesn’t let anything stop him from doing what he dreams of doing.

And a big part of what helps him keep on dreaming and succeeding is all the research and support provided by MDA. See, he has Duchenne’s Muscular Dystrophy. Duchenne muscular dystrophy occurs in about 1 out of every 3,600 male infants. It’s not contagious; its an inherited disorder caused by a defective gene for dystrophin, a protein in the muscles. For more information specifically on DMD, visit this page on genome.gov — its one of the most comprehensive explanations I’ve ever read myself.

Duchenne’s is just one of many muscular disorders covered and researched by MDA. The money raised through the year — especially the amount typically raised in the Labor Day push — can literally be the difference between life and death for thousands fighting a fight many of us couldn’t fathom having to fight.

From the “Where your money goes” page on MDA.org:

* 77 percent of every dollar MDA spends goes directly to research, services and education, and the rest to fundraising and administration.

* MDA spends $70 a minute in its worldwide research program, supporting some 300 projects worldwide.

$70 covers one minute of MDA-supported research; $150 is one physical, occupational, respiratory or speech therapy consultation; and $500 assists one person for one year with repairs to durable medical equipment

Tomorrow is a big day, and I encourage everyone to give at least a little bit. I know there are many, many, many good causes to support, and there’s only so much money to go around. At least tune in tomorrow evening and learn a little more about muscular dystrophy and all the good MDA does for individuals and families fighting this fight. I myself can vouch for the truth in their stories and claims… and maybe it’ll move you to give a little. Even just $5 makes a difference.

MDA SHOW of STRENGTH continues MDA’s Labor Day weekend tradition in a three-hour prime-time broadcast special airing on Sunday, Sept. 2, 8 p.m. ET, 7 p.m. CT. […] Among the celebrities and entertainers scheduled to appear are: Carrie Underwood, Pitbull, will.i.am featuring Eva Simons, Carole King, Paula Abdul, All-American Rejects, Big Bad Voodoo Daddy, B.o.B, Brandy, Luke Bryan, Gavin DeGraw, Hot Chelle Rae, Karmin, Tim McGraw, Alanis Morissette, Khloé Kardashian Odom, OneRepublic and more. In addition to being broadcast on 150 “Love Network” stations across the country, the show will be streamed on mda.org. [source]

Related posts:

* What do you know about Muscular Dystrophy?

* When to give. Why to give.

* Weekly Winners (Jan. 24 – 30) — From 2010′s Stride & Ride

* Labor Day Weekend = MDA Telethon

* Coming up: MDA Muscle Walk

* 2012 Waco MDA Muscle Walk

2012 Waco MDA Muscle Walk

Make a muscle, make a difference.

Today’s MDA Muscle Walk in Waco, TX, was nothing short of amazing.

I’m a night owl, so I often joke that I’ve forgotten some of those AM hours even exist. So, having to be an hour away before 10 AM was the one and only aspect of the day I did not look forward to experiencing. At least jokingly so. I don’t mind getting up early for things I care a lot about doing, and supporting MDA and my nephew ranks right up there at the top of that list.

When my alarm buzzed at 7 AM, I slapped it a couple times, wishing for “just five more minutes.” But I’m proud to say I was up before my final, “you better get a move on RIGHT NOW” alarm went off. I even had time to grab a couple bowls of Cheerios before a fast shower and out the door.

My parents and I met my brother and family and some friends at his house, before we all headed towards Waco in a little mini-convoy. We made it to the Baylor Indoor Practice Field with plenty of time to spare.

2012 Waco MDA Muscle Walk

Two years ago, we all participated in the Dallas Stride & Ride event at Cowboy’s Stadium. I honestly expected this to be a lot time that event, and while it was… it wasn’t. Oh, the focus was the same — MDA — and the idea of walking and riding around the field was the same, but the mood was just more personal.

2012 Waco MDA Muscle Walk

While we had time to visit with others, the event moved quickly and efficiently. MDA provided signs you could personalize with your team name. They took team photos. We had performances from the Baylor Bear Cheerleaders and the LaVega Pirates Cheerleaders. Singer Holly Tucker performed Mariah Carey’s “Hero” — that brought tears to your eyes.

2012 Waco MDA Muscle Walk

More importantly, we had people speak on how MDA has helped them and why they were walking today — including my brother, nephew and his other aunt. It just brought everything home even more than before.

Before the actual walk, they had us all do the Cha Cha Slide, which… hilarious and fun.

2012 Waco MDA Muscle Walk

Then as the walk started, and you looked around at all the people there for the same cause, it was moving. I felt tears well up many times, and I swallowed them down behind my camera. It was powerful. It gave such HOPE. It was simply incredible.

As the walk drew to an end, you couldn’t wipe the smile off my face. My nephew snagged a photo with the whole Baylor softball team. And every student that was there volunteering was helpful and friendly.

I’m an Aggie. But… Baylor really impressed me today.

2012 Waco MDA Muscle Walk

Today was not about school rivalries (though there was some gentle ribbing by the softball coach that even made me chuckle), it was about MDA. And that was what was SO COOL about it. Race. Religion. School allegiance. What TYPE of Muscular Dystrophy. What is your hometown. None of it mattered. Today we were all together under that roof supporting MDA, and the fight to find a cure.

WOW is all I can say.

2012 Waco MDA Muscle Walk

I briefly spoke to the woman in charge of the event. She’d left me a wonderful voice-mail the other day thanking me for supporting Cody, and saying she understood that I live so far away and I’d not make it. I wanted to let her know I was there after all, thank her for her call, and then thank her for all she does for MDA. Instead, she thanked ME. I told her that even if I wasn’t here already, this is an event I’d fly back to attend. It was THAT powerful.

THANK YOU SO MUCH to my supporters and donors. Our team came in second place in fundraising, behind the LaVega Pirates, and you actually made me one of the top participants (#7!)!

I seriously can not thank you all enough… from the bottom of my heart. Thank you for your support of MDA.

2012 Waco MDA Muscle Walk