Tag Archives: MDA

Things on my mind lately

Life. It gives me so much to write about, but so little time to do it in. Which is precisely why I requested this evening at home. So I could write. Then I proceeded to find a bagillion (its a real number) other things to do first. Much to my husband’s amusement, as he’d ask, “So how’s the blogging going?”


So anyway. Things on my mind lately.

As my Weekly Winners stated, it was brought to my attention that my blog was blocked by Google due to malware. (Thank you, Amy, for telling me!) I have another domain name that I’ve honestly never done anything with… but its become a place I house some images used in this blog’s design. Well, that domain name got hacked (thanks to a plug-in on WordPress that was not properly updated — my bad!) and a trojan got installed onto that other domain. Domino effect occurred and even this blog got blocked until the problem was cleared up and the unsecure plug-in was, well, plugged. (Thanks to Lisey for finding and fixing that!)

This blog takes a whole tribe, I swear.

But the important thing is that all is well again, and everyone should be able to access this site again.

If the people who design and install all these viruses, etc. would put their talents to GOOD use, we’d probably have the cure for cancer by now.

Weekend Madness
I don’t write much about my husband’s trips on the road. I feel like there’s an unspoken confidentiality there that I try to respect. I also keep many of my rants and raves about “the life” for the Road Widows blog.

But this last weekend? Hoo boy! The short-version is: bus fire, canceled show, missed connector, lost guitar. ONE of these could derail a run. All four in one weekend! I was a little afraid to pick my husband up at the airport. I kinda wanted to make him take a cab lest we have an accident on the way home with the luck they had on the road. Crazy!! Can we go back to normal no-drama this coming weekend? Please?

That billboard
Grrrrr… here, let me link to this article which says it all really well. (If you don’t click it, its about the billboard that went up in Gainesville, FL that claimed they’d been annexed by “Aggie Nation.” It was only up a few hours before TAMU had it removed.)

Now, let me shake my fist at those errant individuals who seemed to think this would be funny. I’ve gotten ragged about it more than I care this week thanks to you. I was irritated personally due to how bad it made us look, but the add to it the fact that I’ve had to hear about it all week? You are not funny. You are not clever. You are not showing the true Aggie spirit going into this season in the SEC. Please stop wasting your money and donate it to good causes…

Like the Muscular Dystrophy Association! Not real happy with how the Labor Day telethon-but-its-not-a-telethon fundraiser went. Gone is the excitement of watching the numbers rise. Gone is a long period of time to bring in dollars. Yes, they got bigger names than ever before. But, dang it, I don’t watch for that! I watched for the show of hope and love. I watched because it warmed my heart just as fast as it broke it. I watched because the money raised was exciting! (We still don’t have a total, and I doubt we will. Sadness!)

And don’t EVEN get me started on how the local Nashville Fox station decided to cut the last hour and show it after the news instead of just moving the news for one night. I’m still ticked off to the -nth degree about THAT.

Please, MDA, find a way to bring back the Labor Day telethon. Please. We live in a world with blinders… the telethon gave people a view into others’ life struggles and got others to reach out and help each other. Thank you for all you do! And Thank You to everyone who donated!

I hate politics. Be it the presidential election or be it just navigating the work place. Politics stress me out.

That being said. This is the ONLY POLITICAL STATEMENT YOU’LL SEE IN THIS BLOG. So here goes. I don’t consider myself a democrat. I don’t consider myself republican. I don’t consider myself “independent.” I consider myself an American who will vote based on what I see as being the person or people who will care for this country best. So, please, don’t try to sway me that one party is the best party, because I don’t agree with that. I never have. I never will.

I love photography. I AM turning it into a career.

But to say I am disappointed that both  my weddings this year ended up off my books would be an understatement. At least one is just postponed. So that’s hopeful! Its perhaps for the best, since I was so nervous about it. But it also made me sad, and I went through about a week of just not having my usual photo-interest. Licking my wounds, for lack of a better way to describe it. But my interest is back, and I’m not giving up! I love it too much to give up.

Ahhh… I was born and raised in Texas, and there is a reason why all those football movies and TV shows get set in Texas. Football is KING.

When my brother posted on Facebook about hating to see school start. I just replied back, “But… football!”

Be it high school, college or professional. I love it. Last week I was screaming at my laptop, listening to my high school pull off a last minute win with a 2-pt conversion. I’m GIDDY to go get together with other Middle Tennessee Aggies watch Texas A&M play this Saturday. And, hey, the Cowboys won this week. A pleasant surprise for sure! Now lets see what the Titans do…

I. Love. Football. (I don’t love how it can turn normally civil people its jerks, but that’s their issue and beside the point and a post for another time.)

A photo
Since I’m not entirely sure how to end this post, I’ll leave you with a photo…

301: Downtown at sunset

Labor Day means MDA to me

Tomorrow is a big day.

Tomorrow is the MDA Telethon.

Well, okay, so technically this year they aren’t calling it a telethon, but its still MDA’s biggest fundraiser of the entire year.

WHY is the telethon so important? Let me show you a picture my brother sent me last night.

That arrow is pointing at my nephew. On field for his first football game of his Freshman year of high school. ON FIELD. In his motorized wheelchair. He doesn’t let anything stop him from doing what he dreams of doing.

And a big part of what helps him keep on dreaming and succeeding is all the research and support provided by MDA. See, he has Duchenne’s Muscular Dystrophy. Duchenne muscular dystrophy occurs in about 1 out of every 3,600 male infants. It’s not contagious; its an inherited disorder caused by a defective gene for dystrophin, a protein in the muscles. For more information specifically on DMD, visit this page on genome.gov — its one of the most comprehensive explanations I’ve ever read myself.

Duchenne’s is just one of many muscular disorders covered and researched by MDA. The money raised through the year — especially the amount typically raised in the Labor Day push — can literally be the difference between life and death for thousands fighting a fight many of us couldn’t fathom having to fight.

From the “Where your money goes” page on MDA.org:

* 77 percent of every dollar MDA spends goes directly to research, services and education, and the rest to fundraising and administration.

* MDA spends $70 a minute in its worldwide research program, supporting some 300 projects worldwide.

$70 covers one minute of MDA-supported research; $150 is one physical, occupational, respiratory or speech therapy consultation; and $500 assists one person for one year with repairs to durable medical equipment

Tomorrow is a big day, and I encourage everyone to give at least a little bit. I know there are many, many, many good causes to support, and there’s only so much money to go around. At least tune in tomorrow evening and learn a little more about muscular dystrophy and all the good MDA does for individuals and families fighting this fight. I myself can vouch for the truth in their stories and claims… and maybe it’ll move you to give a little. Even just $5 makes a difference.

MDA SHOW of STRENGTH continues MDA’s Labor Day weekend tradition in a three-hour prime-time broadcast special airing on Sunday, Sept. 2, 8 p.m. ET, 7 p.m. CT. […] Among the celebrities and entertainers scheduled to appear are: Carrie Underwood, Pitbull, will.i.am featuring Eva Simons, Carole King, Paula Abdul, All-American Rejects, Big Bad Voodoo Daddy, B.o.B, Brandy, Luke Bryan, Gavin DeGraw, Hot Chelle Rae, Karmin, Tim McGraw, Alanis Morissette, Khloé Kardashian Odom, OneRepublic and more. In addition to being broadcast on 150 “Love Network” stations across the country, the show will be streamed on mda.org. [source]

Related posts:

* What do you know about Muscular Dystrophy?

* When to give. Why to give.

* Weekly Winners (Jan. 24 – 30) — From 2010′s Stride & Ride

* Labor Day Weekend = MDA Telethon

* Coming up: MDA Muscle Walk

* 2012 Waco MDA Muscle Walk